As we approach 500 active and limited community members, to save time and to lessen the number of emails, the Friday Updates are now posted in Section 11 of our 2019 website. There will be occasional reminder emails to check this section for your TGA Project Updates. The 2018 site will remain open to give more time to upgrade our 2019 site and both are free with Wix.com to maintain.

 

This week’s update:

·         Budget remains zero

·         Membership increased by 16 to 473

·         Surveys completed = 210

·         From Dr. Rabinstein:  out of the country until after this weekend. Update to follow

·         Display coming together for Rare Disease Day Feb 28 in Washington

·         2019 website now 98% open for use (2018 still open 100%)

·         Fresh, condensed, and free: www.tgaproject2019.wixsite.com/tga2019

·         Now 100% open

·         Here are the 2019 website Section Listings :

1.    Articles

2.    Coping Checklist

3.    Medical Glossary (under remodel soon, but open)

4.    Privacy Policy

5.    Research Listings (not moved over yet from 2018)

6.    Support Links (not moved over yet from 2018)

7.    Testimonials

8.    Timeline

9.    Wallet Info Card Template

10. Membership World Map (not updated for this week)

11. Updates and etc. (not updated for this week)

 

Thank you for your continued patience as this Project grows, as I learn more about web design, and as we proceed without asking for anyone’s money. Your editing, suggestions, and criticisms are taken with full consideration and with great appreciation. So, thank you again!