TGA
Community
Our beginning...
Our beginning came about in September 2017 after a few Facebook chats and attempts to utilize the internet to learn more about TGA. It was hard to go back to a particular conversation or to a website regarding TGA. I decided to use Wix.com to set-up a free website and Google.com for our email conversations. We have grown into a worldwide community on the web with members in 17 countries. We have reached out via email during this timeframe to over 473 TGA contacts. We are an alliance with no board of directors, no budget, no meetings, and no by-laws. We have an ad hoc committee to ensure future goals are consistent with TGA experience needs. Richard Holl, TGA episode 2013.
Why I created...
Why I created the TGA Project was as a project suggestion one of my medical providers posed. They wanted me to get back involved in something without spending much money. Facebook and blogs didn't interest me, but website design was something new for me to learn. I had struggled with finding, saving, and retrieving TGA information. It was scattered here and there. It was buried in medical summaries.
My TGA was in 2013 and it took me until 2017 to feel like I was productive again. This Project has been well received by past and new TGA patients. The idea was to involve as many TGA ideas and thoughts as we could without spending anyone's money or without taking anyone's family time.
Since 2017, I've met hundreds of TGA patients online. We all have something to say about TGA. Yet we are all unique with different triggers, events, and after side-effects.
Welcome to our community,
Richard Holl, TGA 2013
Project Founder
Marathon, NY USA
TGA Timeline
1956
First described by Bender, M.
Syndrome of Isolated Episode of Confusion with Amnesia. J. Hillside Hospital. 1956;5:212-215.
1958
The first use of term TGA by Fisher, C.Transient global amnesia. Trans Am Neurol Assoc.1958;83:143-146
1964
Fisher details a report of 17 patients Transient global amnesia. Acta Neurol Scand Suppl. 1964;40
1990
First set of criteria for clinical use.
This criterion continues to be the foundation of a TGA diagnosis. Hodges, JR. Syndromes of TGA: towards a classification. J Neurol, Neurosurg, Psychiatry. 1990;53(10);834-843.
2000
Hodge's 3 categories: Pure TGA, Probably Epileptic Amnesia, & Probably TIA. Little consensus as to the precise aetiology. Simons, JS, and Hodges, JR. Transient Global Amnesia. Neurocase, 2000 vol 6; 211-230.
2007
Highlighted psychological support of the patient and family. The Diagnosis and Management of Transient Global Amnesia in the Emergency Department. Harrison, M, and Williams, M. Emergency Medicine Journal. June 2007; 24(6): 444-445.
2012
TGA is regarded as one of the most remarkable neurological conditions in terms of its history, symptoms, and signs. Transient global amnesia. Mandiratta, M. Neurology. August 2012; 27-29.
2015
Has a chart comparing TGA, TEA, and TIA. Transient Global Amnesia. Arena, JE, and Rabinstein, AA. Mayo Clinic; February 2015: 90(2): 264-272.
2017
September: TGA Project 2017 website was created.
Where you are currently visiting.
October: Current Perspectives Article. A very current article that covers many TGA topics by David Spiegel, Transient Global Amnesia: Current Perspectives. Dovepress. Oct 2017; 13:2691-2703.
2018
January: TGA Project 2018 website. Listed as Support Group on National Institutes of Health website at:
https://rarediseases.info.nih.gov/diseases/8172/transient-global-amnesia
March: Attended Rare Diseases Day at National Institutes of Health, Washington, DC.
March: TGA Project 2018 website Certified by Health on the Net.org Switzerland, as a trustworthy and reliable health website. HON Conduct # 381844.
April 25-27: Attended World Orphan Drug Congress USA 2018 in Washington, DC. The 3-day conference admission was provided by the event planners for free after we met at the Rare Disease Day at NIH.
September 17, 2018:
TGA Project begins a collaborative pre-study survey with Mayo Clinic Dr Rabinstein. He has a future study in mind and realizes the direct contact this website has with many TGA patients around the world. The survey remains open.
2019
Current website revised for 2019 Edition.
Mission Statement
A world-wide community of TGA patients and family members has developed a web-based collaboration of information and topics related to the neurological condition: Transient Global Amnesia. Our website provides free information to current and future TGA patients and their families. These new TGA friends and their families have recently experienced an event that gave them some special hours together dealing with a very unique block of time in the TGA patient's life.
An all-volunteer team administers the TGA Project. Their efforts provide our guests with a unique and comprehensive collection of TGA topics, inspirational testimonials, and varied research resources. We are not health care providers. Our function provides assistance and opinions to others as preceding this TGA Project there was very little unified support to aid a patient or family with this neurological diagnosis. We thank our family members as they tolerate us with their patience, love, and sense of humor.
Our Artwork was Created
by Community Member Holly
Thank you from all of us!
