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Who are We?

The photo in the above header with the 6 middle-aged people is a file photo. The following summaries are provided by some of our real-life TGA Community Members to give you insight into how varied our community members are. More summaries will be added in the future.

Richard Holl

Brief Family History

  • Age at TGA 57

  • Current Age 63

  • Married for 38 years

  • 2 boys

  • 2 girls

  • 2 daughter-in-laws

  • 1 granddaughter

  • Retired

​

A Summary of My TGA

  • ​TGA May 2013

  • 28 hours

  • 2 nights/3 days hospitalization

  • Classic repetition of same 4 questions

  • Intercourse was my trigger

  • Came to in 1974

  • No memories of past events 6 months prior to TGA

  • No migraines, stress or immersion

  • Several weeks of brain fog

  • Short-term memory issues continue

  • Depression has lessened

  • Anxiety depends upon situations

  • Bright lights and loud noises are bothersome

  • Acquired many new habits and tendencies

Richard in car 12-3-18.jpg

Fred Niemeier

Brief Family History

  • My wife of 53 years knows to watch for triggers

  • Current age in February 2019 is 75

  • 4 children: 2 boys and 2 girls

  • 7 grandchildren

  • In good health and only med I take is a minimal dose to control Cholesterol which is under 200

  • Blood pressure 120/80 which is good

  • I am active, exercise, cut grass, etc. and play tennis 3 days a week for 2 hours per session

  • Retired Engineer for 10 years

  • No issues while working and under much more stress than now

 

A Summary of My TGA

  • I have had 2 events: One on May 4, 2014, & the second on May 6, 2018

  • The first one lasted about 2 hours around 6 PM and then fog cleared up

  • No hospitalization required but confusion during that time

  • Even the following day when examined by my PCP I could not spell certain words backward

  • I was asked to spell the word "world" which I could do

  • I then was asked to spell it backward and I could not do that

  • No long term effects and no indicators of what caused the event other than stress from a busy day of events on a Sunday

  • Follow up brain MRI showed 

  • This one was much worse and similar to yours may have been brought on by intercourse

  •  I had been under a lot of stress trying to catch up with items after being away from home for 5 months

  • Had numerous PC issues, internet issues, outdoor yard activities, etc. to resolve

  • Woke up in the AM, had breakfast and went into my home office only to discover my PC, printer, etc. missing

  • I could not recall that I had taken the items in for repair the previous day 

  • Kept asking my wife where they were even suggesting that someone may have stolen them

  • Very confused and again repetitively asking the same questions

  • Went to the ER for evaluation

  • Knew where I was but could not recall some questions the ER Dr asked me to remember 5 minutes earlier

  • Did brain MRI and other tests which were negative

  • The event lasted about 3 hours and then the fog cleared up 

  • Kept in the hospital 1 day for observation

  • I still have some short-term memory issues, but can clearly remember prior years

  • Have not needed to take any anxiety med since the last episode but occasionally take a minimal dose while working under stress

  • I am hard self-driven and this anxiety may have been a contributor

  • No depression but prescribed anti-anxiety med to take if under stress  

  • Sounds like I got off easy compared to others in the community

  • I hope this helps

Christrose (Rosie) Sumner

Brief Family History

  • Age at TGA 62

  • Age at 2nd TGA 67

  • Married once, Independent over 30 years

  • 2 sons, 2 daughters-in-law

  • 1 grandson

  • 1 granddaughter

  •  Retired business professional

 

A Summary of My 2 TGA's

  • TGA # 1 - February 2013

  • 8 hours, probably

  • No hospitalization

  • Classic repetition of the same questions

  • No identified trigger; was solo kayaking on Argentinian lake, in new walking sandals, sunset, relatively calm water

  • Came to in the present

  • No memories of events 2 -3 hours prior to TGA

  • No migraines, stress or immersion

  • No brain fog

  • Short-term memory since fine

  • Depression - none

  • Anxiety - not noticeable

  • Bright lights and loud noises are bothersome
     

  • TGA #2 - Midsummer morning 2018

  • 8 hours probably

  • Hospitalization overnight for observation and to get MRI

  • Classic repetition of the same questions

  • No identified trigger (had bought walking sandals day before)

  • Came to in the present

  • No memories of events the night before TGA

  • No remembered or known migraines, stress or immersion

  • Brain a little foggy after

  • Short-term memory since mostly fine, possibly slight deterioration

  • Depression - not clinical, but 'down' a bit and a bit more often

  • Saddened by event and particulars of what I forgot during the event (beloved granddaughter, son's promotion)

  • Anxiety - not noticeable

  • Maybe slightly less adventurous

  • Bright lights and loud noises are bothersome

  • The idea of lots of people and chatter is daunting

Ken _________ (requested no last name but willing to share his summary)

Brief Family History

  • Male, current (Feb 2019) age 79

  • Age at first TGA: 45

  • Age at most severe TGA: 52

  • Married

  • Retired since 2017

TGA Summary

  • Number of TGA episodes to date: 28

  • Most serious TGA: January 1992

  • Not hospitalized

  • Not diagnosed as TGA until second (1992) episode

  • Triggers: sex (25%), physical or mental stress (25%), none (50%)

  • Vary widely in severity

  • Typically last 6-12 hours, depending on severity

  • Currently have about one a year

  • First clue is (false) déjà vu feeling

  • Major symptom is inability to create new memories

  • Bad headache occurs with serious episodes

  • Since 1992, have always recognized as TGA

  • Always very troubling, but no serious permanent damage

  • Have gradually gotten more cautious, but may be age-related

  • Now have short-term memory problems, but may be due to age

  • Finasteride (Rx for enlarged prostate) appears to reduce severity/frequency

​

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