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Complimentary Welcome Packet

Mission Statement

 

Transient Global Amnesia Project (TGA Project 2019) is a grassroots, worldwide community that gathers, collates and publishes information on Transient Global Amnesia (TGA) topics. Our vision offers a comfortable website to share and learn. The mission of our project’s website has created this collection of TGA resources: Personal Testimonials, Medical Research, External Support Links, and Coping Suggestions.

 

Since its identification in 1956, TGA has been a neurological enigma with little available information on either causes or treatments. We strive to understand TGA’s residual grip on our psyche and possible changes to our high-order functioning. A TGA diagnosis does not convey what lies ahead. 

 

Our website does not host any paid advertising. WIX.com provides our website hosting and design for free in exchange for banner placement. We collaborate with internet partners and research entities to provide complimentary TGA related information. We support the discovery of potential treatments during and/or after a TGA episode(s), research on possible long-term sequelae (the aftereffect of a condition), and promotion of fresh educational materials and up-to-date media resources. Our goal to shed light on this enigma shines on every page.

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Mission
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Frequently Asked Questions

 

How Can Joining be Free?

     There are no costs, and no credit card numbers will ever be asked for. If you are a TGA patient or a family member, you have already paid the price of admission. If you are a researcher or medical provider, your cost is also zero.

 

 

What is the Time Commitment?

     Your choice, because you control your keyboard. You look over the email subject lines and decide what to open. You quickly scan the email text box and decide if you want to open the attachment if one is included. You decide to open the attachment and read it over or not. If you see changes, controversy, edits, errors, omissions, or you just have an idea - then you let us know by email. We do not have any deadlines for our own website, but occasionally we may face an outside publisher's deadline causing us to send out a special email with an attachment for review. Every Friday you will get an email update and a monthly report too.

 

How is My Information Protected?

     We follow HIPPA Confidentiality Guidelines. We never ask for personal contact information such as street address, postal address, or city. We never ask for your home phone number or your cell number. We never ask for a credit card number or anything about your banking. We try not to ask for last names unless we get too many Sally's or Steve's.


Our site is Health on the Net certified. HON Conduct # 381844.

 

How are New Members Solicited?

     Facebook was PHASE 1 of our beginning invite list. We befriended many of the active posters and then followed up with a Messenger email. We explained the TGA Project and gave them the option to join by submitting their email address. The email then took their first name, US State or International Country, and the next TGA Membership number into a line on our database. If the last name is supplied that can be helpful due to repeat Sally's and Steve's - but it really isn't required.

      Now we are in PHASE 2, and enrolling new members via their direct application through our website. The above requirements are still all we need: email, name, and location.

     If you desire to OPT OUT, we simply delete your name and email from your TGA line number. That just leaves your number line blank with your information deleted. Or you can step down to Limited and only receive the Monthly Update. Even when you Opt Out, you still have full access to our website.

 

How Do I Cancel My Membership?

     We call it OPT-OUT. Please notify us by email (tgaproject2018@gmail.com). We simply leave your TGA line number in our database with the words Opt Out instead of your name, email, and location. If you get an extra email or two after you Opt Out, please give us 2-3 days or remind us to remove your email from the group email list. You will still have full access to our website and Facebook page.

 

Can Members of My Family Join?

     Yes. You can contact us at with their first name, US State or International Country, and their email. They can submit their name, location, and email via the website contact. Either way, the cost is still FREE.

 

Are There Surveys and Polls?

     Yes. We have worked on several surveys relating to TGA symptoms, triggers, and after effects. The design of this website became a higher priority than the surveys, but they can be found in our Project Files section of the Library. They are currently in Excel format and still need further editing. We give you the following options: participation, level of completion, means to submit, and what will be done with the collected data. Please see the Privacy Page for complete details.

 

How is the TGA Project Funded?

     We are a grassroots group of over 200 TGA volunteers from around the world. We have a zero budget spreadsheet. We don't accept donations. We give our time, ideas, suggestions, corrections, and criticisms to the TGA Project as a free will offering. We receive no funding from any outside sources.

 

Why is TGA so Unique?

     Compared to other human conditions, our neurological patient count is very small in numbers. Some of that may be due to language barriers, some people may not report their TGA event, some may not get a true TGA diagnosis, and some may not go to the internet to learn more about TGA and thus find us. Therefore, with such small numbers, we are only researched by a few medical researchers.

      TGA has remained unique in several ways. There are several possible triggers. There are other similar possible neurological diagnoses. There are varying lengths of time TGA patients are in the "reboot phase." There are some patients who have repeat events over the years and others who have had only one. There are many with no after effects, and there are some with lingering after effects.

      We are very fortunate that TGA is not a terminal diagnosis, nor does it require surgery, and it doesn't leave one paralyzed, blind, or deaf. Its complication comes from its sudden onset, its bizarre symptom of zero short-term memory for several hours, and its brush with dementia.

Wallet Info Card Template

 

This button will take you to an Excel Spreadsheet that allows you to print a Wallet Info Card for free on your home printer. This template was designed by fellow TGA Community Members. It may be a very handy form if you are alone and have a repeat TGA.

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FAQ
Wallet

Coping Suggestions

 

This button will take you to an Excel Spreadsheet that allows you to print a Wallet Info Card for free on your home printer. This template was designed by fellow TGA Community Members. It may be a very handy form if you are alone and have a repeat TGA.  

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Coping
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How to Explain Transient Global Amnesia

The following is an Op-Ed on the subject of explaining TGA. This article was written from the perspective that I see things.  I was 57 at the time of my one and only TGA episode. My episode was classic, except for the length. I took 27 hours to come back to 2013 from 1974. I am not an expert on this topic. Always discuss treatment options with your primary medical provider and/or neurological specialist. 

 

Let’s start out with a simple definition from Wikipedia:

"Transient Global Amnesia (TGA) is a neurological disorder whose key defining characteristic is a temporary but almost total disruption of short-term memory with a range of problems accessing older memories. A person in a state of TGA exhibits no other signs of impaired cognitive functioning but recalls only the last few moments of consciousness, as well as possibly a few deeply encoded facts of the individual's past, such as their childhood, family, or home perhaps."

https://en.wikipedia.org/wiki/Transient_global_amnesia

 

A second consideration is TGA is a very, very rare condition. However, there are some similarities to a person having a stroke or TIA. Therefore you should be evaluated in an emergency room. Stroke is life-threatening, but TGA is not. 

 

Next, I will outline several ways to explain TGA. I will inject some humor as well. In my opinion, humor is the best medicine for TGA. Just don’t overuse humor, as no one will take you seriously. You will find you are walking a fine line when talking to someone about your TGA.

 

Remember, most people have a very short attention span. They will say, “How are you?” “I heard you had a breakdown.” “I’m sorry you have Alzheimer’s.” “Are you kidding me?” Then when you start to explain, they will drift away or let out a giggle.

 

I have never used the “It was a governmental conspiracy with brain waves and clicking noises.” When I’m feisty, I look up to the sky, point straight up, and say, “I’ve been to the Mother-ship.” They usually shake their head and give me the “I’m sorry look.” I usually shrug my shoulders and tilt my head. If they stick around, they may ask about the inside of the alien ship. At that point, laugh with them and say “I really don’t remember.”

 

To be medically correct, your answer can include the above definition and some other medical references. Very few will stay with you at this point. They’ll just say, “How odd or too bad.” I’ve tried to explain TGA to various medical providers and nurses. They sort of nod and run along as they don’t have time to chit-chat.

 

Another approach is to say your TGA happened during intercourse. This sexual remark usually catches their attention and your partner’s scorn. For some TGA patients this is a true story, but again don’t overplay the jokes that automatically go with this storyline. This is where the saying “Mind Blowing Sex” comes from.

 

Often some TGA patients think sad news or death of a close relative triggered their brain to turn off. Other TGA patients have been under an extreme amount of stress, which finally overloads the brain to the point of automatic shutdown. We also have some patients who think immersion in very hot or very cold water triggers their brain to lockdown. Intense physical workouts have had the same shut-off events leading to a TGA.

 

Taking your listener into your Hippocampus will lose them just about as quick as you lost your memory. The same can be said when you provide them unpleasant details about blood flow, back-pressure in the neck veins, possible white spots during an MRI on your brain, etc. Medical tests never seem to be very interesting to the casual listener.

 

As you look into your listener’s eyes, you can say, “I really don’t remember, but my family was very scared.” You can say you were very relaxed and couldn’t figure out why your family kept a watchful eye on you as you kept asking, “Why did they bring you to the hospital?”

 

Finally, you can tell your listener, "I don't owe you twenty dollars!"

 

Finish your conversation by telling them, "I try not to think about it too much because it's amazing because there is nothing there. When I do think about it, I get an odd, tense feeling. Much like going down a lonely interstate at midnight doing 75 mph and turning off the headlights." That one will most likely get a "wow!" out of them.

 

If you have questions, send me an email at: tgaproject2019@gmail.com

Sincerely, Richard Holl

 

 

 

 

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